From the WAVY-TV News archives, 1983
In a 1983 report from WAVY-TV News, a seven-year-old boy suffering from an inherited liver disease was placed on the active waiting list for a liver transplant, thrusting his family into a period of intense medical urgency and financial uncertainty. At the time, pediatric liver transplantation was performed at only a handful of centers nationwide, including Children’s Hospital of Pittsburgh, where the child would have to be transported on just a few hours’ notice if a donor organ became available.
The boy’s condition—advanced cirrhosis—had already robbed him of a normal childhood. He was unable to play like other children and faced constant danger from internal bleeding and a severely enlarged spleen. Physicians warned that without a transplant, his health would continue to deteriorate.
His parents, Diane Johnson and her husband Dennis, a telephone worker, were interviewed as they confronted overlapping crises. Dennis Johnson was out of work during a strike by the Communications Workers of America, and the family had no insurance coverage for transplant surgery. Hospital estimates in 1983 placed the cost of the procedure between $90,000 and $150,000, not including airfare to Pittsburgh or the living expenses the parents would incur while remaining near their son during recovery.
Doctors told the family that financial hardship would not prevent the child from being listed for transplantation. Still, the practical reality loomed large: arranging emergency travel across state lines and confronting overwhelming medical bills at a moment’s notice.
The WAVY-TV report focused on the high-stakes process of transplantation in the early 1980s—locating a suitable donor organ, coordinating rapid transport, and managing the risks of complex surgery and post-operative care. For the Johnson family, each day carried emotional weight as they watched their son wait, hoping for the chance to survive, recover, and one day play freely like other children.
This 1983 account highlights the convergence of medical innovation, limited regional expertise, and immense cost during the early years of pediatric liver transplantation—and how labor disputes and lack of insurance could intensify the burden on families whose children’s lives depended on a single, urgent call.
Video originally published on 2026-01-16 12:03:11
