A collaborative research effort from CareDx and The American Association of Kidney Patients has revealed some of transplant patients’ top concerns. Here are three of the survey‘s key findings.
Most transplant patients are afraid of rejection.
Rejection is by far transplant candidates and recipients’ worst fear. A study revealed that over 50% of transplant patients were “very” or “extremely” worried about rejection.
As patients learn during the transplant journey, rejection occurs when your immune system designates a transplanted organ as an enemy and attacks it. Lifelong immonusuppressant medications help your immune system to view a transplanted organ as an ordinary part of the body instead of threatening invader.
One of the tough realities of transplantation is that almost all transplant patients will experience rejection in some form. Experiencing a rejection incident does not instantly mean losing a transplanted organ.
Transplant patients want quick, precise, and non-invasive support.
86% of transplant recipients said that they would prefer a blood test over a biopsy to help detect organ rejection. In addition to non-invasive detection options, transplant patients said the most important elements of the rejection management care process were “timeliness” and “precise information.”
Lack of financial support is a significant patient risk.
35% of transplant recipients admitted skipping at least some medication doses each month. Even small medication compliance incidents can have big consequences for transplant patients, including triggering organ rejection.
Why do so many transplant patients struggle to stick to their medication schedule? The number-one barrier to transplant medication compliance is financial: either lack of health insurance or inability to cover the out-of-pocket cost of transplant meds.
If you or someone you know is struggling with the out-of-pocket costs of transplant medication, don’t wait for compliance to become a health-threatening concern. Find out if community fundraising is a good fit.