Thursday, September 24, 2020

Family devastated as Scots toddler’s US stem cell transplant falls through in blood cancer battle

Transplant News Sharing // News from Source www.thescottishsun.co.uk

THE family of a toddler battling a rare form of blood cancer have been left devastated after a life-saving bone marrow donor fell through.

Little Adeline Davidson, three, has been receiving weekly blood transfusions to keep her alive.

Adeline Davidson is battling a rare form of blood cancer

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Adeline Davidson is battling a rare form of blood cancerCredit: Instagram @adelinebluesjourney_x

The brave tot, from Alness, Easter Ross, has myelodysplasia, an extremely rare form of blood cancer that affects only one in 250,000 children.

Doctors had found a female donor – assessed as a 9/10 match – who lives in the United States.

Adeline was set to be prepared for the transplant – which can help restore the body’s ability to make blood cells – in February, and undergoing the procedure in March.

But in a fresh blow, parents Stephanie and Jordon have been told the donor match is no longer available.

Stephanie told STV News: “I was expecting a date for transplant, but were called and told we now have no donors available.

“The reasons are confidential on their part, but what I can say is it is a lot to to do with the pandemic.

Little Adeline needs a bone marrow transplant

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Little Adeline needs a bone marrow transplantCredit: Instagram @adelinebluesjourney_x

“We have been waiting almost two years and we are back to square one, just with less hope this time – there is nobody on the register that matches Adeline so we have to start again really.”

Stephanie and Jordan – also parents to one-year-old twins, Josie and Jude – are now urging people to get tested as donor matches for their daughter’s “life or death” case.

Hundreds of people had already turned out to a public donor drive in Inverness last year but the coronavirus pandemic means that is now not an option.

The family now hope that people will sign up online for test kits sent to their doors.

Stephanie added: “It’s hard – Covid was one of our first setbacks when we thought she was getting her transplant in February, but it was delayed and now we don’t have the donors that we had.

“A lot of people use the expression ‘it’s life or death’ but it really is.

“All we can do is hope that we find a new donor by getting word out and getting more people to sign up on the donor register.

“It just takes one person but it’s a whole wide world out there – it’s our only hope.”

To register, visit the Anthony Nolan website here.

Stephanie is charting Adeline’s journey on the Instagram feed @adelinebluesjourney_x and says messages of support there mean the world to the family.

Transplant News Sharing // “Stem Cell Transplants” – Google News from Source www.thescottishsun.co.uk

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